Treatment keeps girl child-sized [how horrifying for the parents]



 Religions > Atheism > Treatment keeps girl child-sized [how horrifying for the parents]

LINK TO THIS PAGE  


rating :  0   |  0


  Page 1 of 1

1

 
Topic: Religions > Atheism
User: "stoney"
Date: 04 Jan 2007 11:43:02 AM
Object: Treatment keeps girl child-sized [how horrifying for the parents]
http://news.bbc.co.uk/2/hi/americas/6229799.stm
Thursday, 4 January 2007, 15:54 GMT
Treatment keeps girl child-sized
Parents of a severely disabled girl in the US have revealed that they
are keeping her child-sized in order to give her a better life.
The nine-year-old, named Ashley, has the mental ability of a
three-month-old baby and cannot walk or talk.
Along with hormone doses to limit her growth, Ashley's parents also
opted for surgery to block breast growth and had her uterus and appendix
removed.
They say the treatment will help to improve her quality of life.
Ashley's parents, Seattle residents who have not given their names, went
public over their daughter's treatment in a blog launched on 1 January.
Their decision came after information about Ashley's case was published
in a US medical journal last year, triggering considerable debate and
criticism.
Ashley's parents say that because she will remain the weight of a child,
it will be easier for them to move her around, bathe her and involve her
in family activities - movement that will benefit her physical and
mental well-being.
Dr Douglas Diekema from the University of Washington in Seattle, who was
on the ethics committee that gave the go-ahead for Ashley's treatment,
told the BBC that the panel agreed "because the parents convinced us it
was in fact in this little girl's best interests".
"If she were smaller it would be much easier for them to continue to
provide a much more personal level of care," he said.
But Agnes Fletcher of the UK's Disability Rights Commission said is was
"unnecessary medical treatment to deal with what is essentially a social
problem", referring to "the poverty and lack of support" faced by
families with disabled children.
'Improve her life'
Ashley's parents wrote in their blog: "A fundamental and universal
misconception about the treatment is that it is intended to convenience
the caregiver.
"Rather, the central purpose of the treatment is to improve Ashley's
quality of life."
Ashley has static encephalopathy, a rare brain condition which will not
improve. Her parents call her "Pillow Angel", because she does not move
from wherever they put her, usually on a pillow.
The couple decided three years ago to take steps to minimise their
daughter's adult height and weight.
In July 2004 Ashley began hormone treatment, through patches on the
skin, that is expected to reduce her untreated height by 20% and weight
by 40%.
Abuse fears
Ashley's parents said the decision to remove their daughter's uterus and
breast buds was for the girl's comfort and safety.
"Ashley has no need for her uterus since she will not be bearing
children," they said, adding that the decision means she will not
experience the menstrual cycle and the bleeding and discomfort commonly
associated with it.
The operation also removed the possibility of pregnancy if Ashley were
ever the victim of sexual abuse, they said.
The removal of the girl's breast buds was also done in part to avoid
sexual abuse, but was carried out primarily so she would not experience
discomfort when lying down, the parents said.
The couple emphasised their love for their daughter and said the amount
of criticism their choice of treatment attracted had surprised them.
"If the concern has something to do with the girl's dignity being
violated, then I have to protest by arguing that the girl lacks the
cognitive capacity to experience any sense of indignity," they said.
"The oestrogen treatment is not what is grotesque here. Rather, it is
the prospect of having a full-grown and fertile woman endowed with the
mind of a baby."
/end
--
Fundies and trolls are cordially invited to
shove a wooden cross up their arses and rotate
at a high rate of speed. I trust you'll
be 'blessed' with a plethora of splinters.
.

User: "Denis Loubet"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 04 Jan 2007 12:10:35 PM
"stoney" <stoney@the.net> wrote in message
news:kveqp25s49afuehsdcnr28qm31po2r97t8@4ax.com...

http://news.bbc.co.uk/2/hi/americas/6229799.stm

Thursday, 4 January 2007, 15:54 GMT

Treatment keeps girl child-sized

Parents of a severely disabled girl in the US have revealed that they
are keeping her child-sized in order to give her a better life.

That won't stop fucktards from second guessing their motives.
--
Denis Loubet
dloubet@io.com
http://www.io.com/~dloubet
http://www.ashenempires.com
.

User: "Ben Kaufman"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 06 Jan 2007 08:29:17 PM
On Thu, 04 Jan 2007 09:43:02 -0800, stoney <stoney@the.net> wrote:

http://news.bbc.co.uk/2/hi/americas/6229799.stm

Thursday, 4 January 2007, 15:54 GMT

Treatment keeps girl child-sized

<SNIP>
Very sad situation.
I think they did the right thing.
Ben
.
User: "stoney"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 12 Jan 2007 03:41:15 PM
On Sat, 06 Jan 2007 21:29:17 -0500, Ben Kaufman
<spaXm-mXe-anXd-paXy-5000-dollars@pobox.com> wrote in alt.atheism

On Thu, 04 Jan 2007 09:43:02 -0800, stoney <stoney@the.net> wrote:

http://news.bbc.co.uk/2/hi/americas/6229799.stm

Thursday, 4 January 2007, 15:54 GMT

Treatment keeps girl child-sized

<SNIP>
Very sad situation.
I think they did the right thing.

Indeed. :\
--
Fundies and trolls are cordially invited to
shove a wooden cross up their arses and rotate
at a high rate of speed. I trust you'll
be 'blessed' with a plethora of splinters.
.
User: "Michelle Malkin"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 12 Jan 2007 07:04:52 PM
"stoney" <stoney@the.net> wrote in message
news:d30gq2hr4ceq4gdu509f0uss367g73ibh0@4ax.com...

On Sat, 06 Jan 2007 21:29:17 -0500, Ben Kaufman
<spaXm-mXe-anXd-paXy-5000-dollars@pobox.com> wrote in alt.atheism

On Thu, 04 Jan 2007 09:43:02 -0800, stoney <stoney@the.net> wrote:

http://news.bbc.co.uk/2/hi/americas/6229799.stm

Thursday, 4 January 2007, 15:54 GMT

Treatment keeps girl child-sized

<SNIP>
Very sad situation.
I think they did the right thing.


Indeed. :\

I agree.
--
^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^
Michelle Malkin (Mickey) aa list#1
BAAWA Knight & Bible Thumper Thumper
^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^ ^^
.



User: "sam7i5erotdkhgcx"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 07 Jan 2007 08:42:32 AM
http://novus-ordo-seclorum.us/
The Ashley Treatment is wrong. Wrong in so many fragging ways. They
treat Ashley as if she was a dog. You never take away a person's
humanity. You never make them less human. The parents, the doctors had
no right to do this.
Ashley is nine now. In the next 10 or 20 years they might find a
treatment or cure. I mean we can take cells and grow a liver or a
heart. There is hope for Ashley, there is hope for everyone. If this
was my child I could never do this.
There is no such thing as false hope, there is only hope.
I do not like the term (pillow angel). She is not a pillow angel. She
is not a baby doll. She is not a dog or cat that you can spay and
neuter. She is a human being and should always be treated as one. Her
parents and doctors are both sick. The doctors should have their
medical license taken away.
http://novus-ordo-seclorum.us/
stoney wrote:

http://news.bbc.co.uk/2/hi/americas/6229799.stm

Thursday, 4 January 2007, 15:54 GMT

Treatment keeps girl child-sized

Parents of a severely disabled girl in the US have revealed that they
are keeping her child-sized in order to give her a better life.

The nine-year-old, named Ashley, has the mental ability of a
three-month-old baby and cannot walk or talk.

Along with hormone doses to limit her growth, Ashley's parents also
opted for surgery to block breast growth and had her uterus and appendix
removed.

They say the treatment will help to improve her quality of life.

Ashley's parents, Seattle residents who have not given their names, went
public over their daughter's treatment in a blog launched on 1 January.

Their decision came after information about Ashley's case was published
in a US medical journal last year, triggering considerable debate and
criticism.

Ashley's parents say that because she will remain the weight of a child,
it will be easier for them to move her around, bathe her and involve her
in family activities - movement that will benefit her physical and
mental well-being.

Dr Douglas Diekema from the University of Washington in Seattle, who was
on the ethics committee that gave the go-ahead for Ashley's treatment,
told the BBC that the panel agreed "because the parents convinced us it
was in fact in this little girl's best interests".

"If she were smaller it would be much easier for them to continue to
provide a much more personal level of care," he said.

But Agnes Fletcher of the UK's Disability Rights Commission said is was
"unnecessary medical treatment to deal with what is essentially a social
problem", referring to "the poverty and lack of support" faced by
families with disabled children.

'Improve her life'

Ashley's parents wrote in their blog: "A fundamental and universal
misconception about the treatment is that it is intended to convenience
the caregiver.

"Rather, the central purpose of the treatment is to improve Ashley's
quality of life."

Ashley has static encephalopathy, a rare brain condition which will not
improve. Her parents call her "Pillow Angel", because she does not move
from wherever they put her, usually on a pillow.

The couple decided three years ago to take steps to minimise their
daughter's adult height and weight.

In July 2004 Ashley began hormone treatment, through patches on the
skin, that is expected to reduce her untreated height by 20% and weight
by 40%.

Abuse fears

Ashley's parents said the decision to remove their daughter's uterus and
breast buds was for the girl's comfort and safety.

"Ashley has no need for her uterus since she will not be bearing
children," they said, adding that the decision means she will not
experience the menstrual cycle and the bleeding and discomfort commonly
associated with it.

The operation also removed the possibility of pregnancy if Ashley were
ever the victim of sexual abuse, they said.

The removal of the girl's breast buds was also done in part to avoid
sexual abuse, but was carried out primarily so she would not experience
discomfort when lying down, the parents said.

The couple emphasised their love for their daughter and said the amount
of criticism their choice of treatment attracted had surprised them.

"If the concern has something to do with the girl's dignity being
violated, then I have to protest by arguing that the girl lacks the
cognitive capacity to experience any sense of indignity," they said.

"The oestrogen treatment is not what is grotesque here. Rather, it is
the prospect of having a full-grown and fertile woman endowed with the
mind of a baby."

/end


--
Fundies and trolls are cordially invited to
shove a wooden cross up their arses and rotate
at a high rate of speed. I trust you'll
be 'blessed' with a plethora of splinters.

.
User: "Mark Stahl"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 07 Jan 2007 01:59:56 PM
"sam7i5erotdkhgcx" <dumpdrop@hotmail.com> wrote in message
news:1168180952.164009.88120@s34g2000cwa.googlegroups.com...

http://novus-ordo-seclorum.us/

The Ashley Treatment is wrong. Wrong in so many fragging ways.

I disagree.

They
treat Ashley as if she was a dog.

No. They treat her as if she were a person with severe, incurable mental
retardation whose body is developing while her mind cannot.

You never take away a person's
humanity. You never make them less human.

Which, of course, they did not do nor could they have done.

The parents, the doctors had
no right to do this.

Certainly they did. They are the ones entrusted with her difficult care,
which they are undertaking the best way they can. Let's hope you never find
yourself in such a difficult situation. Who are you to judge them?


Ashley is nine now. In the next 10 or 20 years they might find a
treatment or cure.

This statement, while perhaps well meaning, demonstrates a deep ignorance of
her condition. It is not treatable, or curable- there is no possibility,
however remote, that this brain can suddenly begin to develop. There is
nothing there to treat.

I mean we can take cells and grow a liver or a
heart. There is hope for Ashley, there is hope for everyone.

Unfortunately, this just isn't true.

If this
was my child I could never do this.

So you say from the comfort of your keyboard, not faced with the situation.


There is no such thing as false hope, there is only hope.

Now, please. That's just silly.


I do not like the term (pillow angel). She is not a pillow angel.

Not my favorite term, either, but so what?

She
is not a baby doll. She is not a dog or cat that you can spay and
neuter. She is a human being and should always be treated as one.

She is being treated as one, one with an exceptionally debilitating
retardation. In fact, her treatment is probably better than anyone else with
a similar condition could reasonably expect.

Her
parents and doctors are both sick.

If there's anyone 'sick' here, it's you for passing such harsh judgement on
people and a situation you are so profoundly ignorant of.

The doctors should have their
medical license taken away.

Why?


http://novus-ordo-seclorum.us/

stoney wrote:

http://news.bbc.co.uk/2/hi/americas/6229799.stm

Thursday, 4 January 2007, 15:54 GMT

Treatment keeps girl child-sized

Parents of a severely disabled girl in the US have revealed that they
are keeping her child-sized in order to give her a better life.

The nine-year-old, named Ashley, has the mental ability of a
three-month-old baby and cannot walk or talk.

Along with hormone doses to limit her growth, Ashley's parents also
opted for surgery to block breast growth and had her uterus and appendix
removed.

They say the treatment will help to improve her quality of life.

Ashley's parents, Seattle residents who have not given their names, went
public over their daughter's treatment in a blog launched on 1 January.

Their decision came after information about Ashley's case was published
in a US medical journal last year, triggering considerable debate and
criticism.

Ashley's parents say that because she will remain the weight of a child,
it will be easier for them to move her around, bathe her and involve her
in family activities - movement that will benefit her physical and
mental well-being.

Dr Douglas Diekema from the University of Washington in Seattle, who was
on the ethics committee that gave the go-ahead for Ashley's treatment,
told the BBC that the panel agreed "because the parents convinced us it
was in fact in this little girl's best interests".

"If she were smaller it would be much easier for them to continue to
provide a much more personal level of care," he said.

But Agnes Fletcher of the UK's Disability Rights Commission said is was
"unnecessary medical treatment to deal with what is essentially a social
problem", referring to "the poverty and lack of support" faced by
families with disabled children.

'Improve her life'

Ashley's parents wrote in their blog: "A fundamental and universal
misconception about the treatment is that it is intended to convenience
the caregiver.

"Rather, the central purpose of the treatment is to improve Ashley's
quality of life."

Ashley has static encephalopathy, a rare brain condition which will not
improve. Her parents call her "Pillow Angel", because she does not move
from wherever they put her, usually on a pillow.

The couple decided three years ago to take steps to minimise their
daughter's adult height and weight.

In July 2004 Ashley began hormone treatment, through patches on the
skin, that is expected to reduce her untreated height by 20% and weight
by 40%.

Abuse fears

Ashley's parents said the decision to remove their daughter's uterus and
breast buds was for the girl's comfort and safety.

"Ashley has no need for her uterus since she will not be bearing
children," they said, adding that the decision means she will not
experience the menstrual cycle and the bleeding and discomfort commonly
associated with it.

The operation also removed the possibility of pregnancy if Ashley were
ever the victim of sexual abuse, they said.

The removal of the girl's breast buds was also done in part to avoid
sexual abuse, but was carried out primarily so she would not experience
discomfort when lying down, the parents said.

The couple emphasised their love for their daughter and said the amount
of criticism their choice of treatment attracted had surprised them.

"If the concern has something to do with the girl's dignity being
violated, then I have to protest by arguing that the girl lacks the
cognitive capacity to experience any sense of indignity," they said.

"The oestrogen treatment is not what is grotesque here. Rather, it is
the prospect of having a full-grown and fertile woman endowed with the
mind of a baby."

/end


--
Fundies and trolls are cordially invited to
shove a wooden cross up their arses and rotate
at a high rate of speed. I trust you'll
be 'blessed' with a plethora of splinters.


.

User: "stoney"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 12 Jan 2007 03:47:54 PM
On 7 Jan 2007 06:42:32 -0800, "sam7i5erotdkhgcx" <dumpdrop@hotmail.com>
wrote in alt.atheism

http://novus-ordo-seclorum.us/

The Ashley Treatment is wrong. Wrong in so many fragging ways. They
treat Ashley as if she was a dog. You never take away a person's
humanity. You never make them less human. The parents, the doctors had
no right to do this.

Ashley is an mental infant. The dog is more intelligent, but the parents
were/are doing the best they could/can.
In a Christian Nation® the parents had to protect the infant from
Christian predators. If you want to complain then complain to 'god' and
the christian molestors. Don't blame the victims.

Ashley is nine now. In the next 10 or 20 years they might find a
treatment or cure. I mean we can take cells and grow a liver or a
heart. There is hope for Ashley, there is hope for everyone. If this
was my child I could never do this.

There is no hope and never say never. You don't know the path which
might lead you to the same decisions the parents agonizingly made.

There is no such thing as false hope, there is only hope.

Hopeless.

I do not like the term (pillow angel). She is not a pillow angel.

I don't either. However, black humour does serve a purpose oh arrogant
top poster.

She
is not a baby doll. She is not a dog or cat that you can spay and
neuter. She is a human being and should always be treated as one. Her
parents and doctors are both sick. The doctors should have their
medical license taken away.

So drools a fountain of ignorance.
--
Fundies and trolls are cordially invited to
shove a wooden cross up their arses and rotate
at a high rate of speed. I trust you'll
be 'blessed' with a plethora of splinters.
.

User: "Ben Kaufman"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 08 Jan 2007 01:09:29 PM
On 7 Jan 2007 06:42:32 -0800, "sam7i5erotdkhgcx" <dumpdrop@hotmail.com> wrote:

http://novus-ordo-seclorum.us/

The Ashley Treatment is wrong. Wrong in so many fragging ways. They
treat Ashley as if she was a dog. You never take away a person's
humanity. You never make them less human. The parents, the doctors had
no right to do this.

Ashley is nine now. In the next 10 or 20 years they might find a
treatment or cure. I mean we can take cells and grow a liver or a
heart. There is hope for Ashley, there is hope for everyone. If this
was my child I could never do this.

There is no such thing as false hope, there is only hope.

I do not like the term (pillow angel). She is not a pillow angel. She
is not a baby doll. She is not a dog or cat that you can spay and
neuter. She is a human being and should always be treated as one. Her
parents and doctors are both sick. The doctors should have their
medical license taken away.

<SNIP>
If they were treating Ashley like a dog then Ashley would have been euthanized a
long time ago - that's what you do when a puppy or kitten is born with such
severe brain abnormality.
They are treating her as human. But there is a world of difference in what is
in the best interest for a disabled human's quality of life with a normal brain
versus one who will remain a 3 month old. There is no cure for being born
without a significant amount of your brain. But rest assured that if they figure
out how to grow a brain and make it intelligent then regrowing a uterus and
breasts will be a cinch.
Ben
.

User: "Pangur Ban"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 07 Jan 2007 09:49:12 AM
sam7i5erotdkhgcx submitted this idea :

http://novus-ordo-seclorum.us/
The Ashley Treatment is wrong. Wrong in so many fragging ways. They
treat Ashley as if she was a dog. You never take away a person's
humanity. You never make them less human. The parents, the doctors had
no right to do this.

Ashley is still a human; nothing was removed or suppressed that makes
her human. Your comment about her being treated as"a dog" is
inaccurate; a dog can be trained and she cannot. Ashley has the brain
capacity of a three month old; she cannot even be potty trained. She
was treated better than a dog in that steps were taken to maintain a
quality of life that would have deteriorated as her body grew and
developed. Keeping her small enables her parents to keep her at home
for many years and to prevent the bed sores, rashes, and infections
that inevitably follow when such a severely mentally handicapped person
reaches a size and weight which requires institutionalization.

Ashley is nine now. In the next 10 or 20 years they might find a
treatment or cure. I mean we can take cells and grow a liver or a
heart. There is hope for Ashley, there is hope for everyone. If this
was my child I could never do this.

That is your choice; you don't have child like that apparently. You
should not judge until you are facing the reality of such a child - not
what you imagine. Humans consistently overestimate their abilities to
deal with all manner of situations for their families - death,
incurable diseases, physical handicaps, and mental ones such as
Ashley's. You have done such thoughtless overestimating.

There is no such thing as false hope, there is only hope.

So? You estimated 10 to 20 years; that is very optimistic as so many
are trying to limit or downright prevent stem cell research. During
those 15 years, Ashley's body would have continued to develop - and
would have required immense resources - emotional, physical, and
financial - to give and maintain muscle tone, to prevent bed sores, to
fight the inevitable infections - and so on. That's 15 years of
potential death from the problems mentioned on the very very tiny hope
of a "cure". If a "cure" is found in 15 years, Ashley would be in her
late twenties to early thirties - and facing another 20 years of
education and physical therapy ... a better possibility than having her
dead without what her parents chose to do.

I do not like the term (pillow angel). She is not a pillow angel. She
is not a baby doll. She is not a dog or cat that you can spay and
neuter. She is a human being and should always be treated as one.

She was - albeit as a human with extremely minimal cognitive ability.

Her
parents and doctors are both sick. The doctors should have their
medical license taken away.

Pffft! They have more care, concern, and compassion than you - and
based on infinitely more education and experience than you.
All that said, I do commend you concern for the child - misplaced and
uninformed as it is.

http://novus-ordo-seclorum.us/
stoney wrote:

http://news.bbc.co.uk/2/hi/americas/6229799.stm

Thursday, 4 January 2007, 15:54 GMT

Treatment keeps girl child-sized

Parents of a severely disabled girl in the US have revealed that they
are keeping her child-sized in order to give her a better life.

The nine-year-old, named Ashley, has the mental ability of a
three-month-old baby and cannot walk or talk.

Along with hormone doses to limit her growth, Ashley's parents also
opted for surgery to block breast growth and had her uterus and appendix
removed.

They say the treatment will help to improve her quality of life.

Ashley's parents, Seattle residents who have not given their names, went
public over their daughter's treatment in a blog launched on 1 January.

Their decision came after information about Ashley's case was published
in a US medical journal last year, triggering considerable debate and
criticism.

Ashley's parents say that because she will remain the weight of a child,
it will be easier for them to move her around, bathe her and involve her
in family activities - movement that will benefit her physical and
mental well-being.

Dr Douglas Diekema from the University of Washington in Seattle, who was
on the ethics committee that gave the go-ahead for Ashley's treatment,
told the BBC that the panel agreed "because the parents convinced us it
was in fact in this little girl's best interests".

"If she were smaller it would be much easier for them to continue to
provide a much more personal level of care," he said.

But Agnes Fletcher of the UK's Disability Rights Commission said is was
"unnecessary medical treatment to deal with what is essentially a social
problem", referring to "the poverty and lack of support" faced by
families with disabled children.

'Improve her life'

Ashley's parents wrote in their blog: "A fundamental and universal
misconception about the treatment is that it is intended to convenience
the caregiver.

"Rather, the central purpose of the treatment is to improve Ashley's
quality of life."

Ashley has static encephalopathy, a rare brain condition which will not
improve. Her parents call her "Pillow Angel", because she does not move
from wherever they put her, usually on a pillow.

The couple decided three years ago to take steps to minimise their
daughter's adult height and weight.

In July 2004 Ashley began hormone treatment, through patches on the
skin, that is expected to reduce her untreated height by 20% and weight
by 40%.

Abuse fears

Ashley's parents said the decision to remove their daughter's uterus and
breast buds was for the girl's comfort and safety.

"Ashley has no need for her uterus since she will not be bearing
children," they said, adding that the decision means she will not
experience the menstrual cycle and the bleeding and discomfort commonly
associated with it.

The operation also removed the possibility of pregnancy if Ashley were
ever the victim of sexual abuse, they said.

The removal of the girl's breast buds was also done in part to avoid
sexual abuse, but was carried out primarily so she would not experience
discomfort when lying down, the parents said.

The couple emphasised their love for their daughter and said the amount
of criticism their choice of treatment attracted had surprised them.

"If the concern has something to do with the girl's dignity being
violated, then I have to protest by arguing that the girl lacks the
cognitive capacity to experience any sense of indignity," they said.

"The oestrogen treatment is not what is grotesque here. Rather, it is
the prospect of having a full-grown and fertile woman endowed with the
mind of a baby."

/end


--
Fundies and trolls are cordially invited to
shove a wooden cross up their arses and rotate
at a high rate of speed. I trust you'll
be 'blessed' with a plethora of splinters.

--
Pangur Ban - nonchristian theist
.


User: "Pangur Ban"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 04 Jan 2007 08:44:45 PM
stoney explained :

http://news.bbc.co.uk/2/hi/americas/6229799.stm
Thursday, 4 January 2007, 15:54 GMT
Treatment keeps girl child-sized
Parents of a severely disabled girl in the US have revealed that they
are keeping her child-sized in order to give her a better life.
The nine-year-old, named Ashley, has the mental ability of a
three-month-old baby and cannot walk or talk.
Along with hormone doses to limit her growth, Ashley's parents also
opted for surgery to block breast growth and had her uterus and appendix
removed.
They say the treatment will help to improve her quality of life.
Ashley's parents, Seattle residents who have not given their names, went
public over their daughter's treatment in a blog launched on 1 January.
Their decision came after information about Ashley's case was published
in a US medical journal last year, triggering considerable debate and
criticism.
Ashley's parents say that because she will remain the weight of a child,
it will be easier for them to move her around, bathe her and involve her
in family activities - movement that will benefit her physical and
mental well-being.
Dr Douglas Diekema from the University of Washington in Seattle, who was
on the ethics committee that gave the go-ahead for Ashley's treatment,
told the BBC that the panel agreed "because the parents convinced us it
was in fact in this little girl's best interests".
"If she were smaller it would be much easier for them to continue to
provide a much more personal level of care," he said.
But Agnes Fletcher of the UK's Disability Rights Commission said is was
"unnecessary medical treatment to deal with what is essentially a social
problem", referring to "the poverty and lack of support" faced by
families with disabled children.
'Improve her life'
Ashley's parents wrote in their blog: "A fundamental and universal
misconception about the treatment is that it is intended to convenience
the caregiver.
"Rather, the central purpose of the treatment is to improve Ashley's
quality of life."
Ashley has static encephalopathy, a rare brain condition which will not
improve. Her parents call her "Pillow Angel", because she does not move
from wherever they put her, usually on a pillow.
The couple decided three years ago to take steps to minimise their
daughter's adult height and weight.
In July 2004 Ashley began hormone treatment, through patches on the
skin, that is expected to reduce her untreated height by 20% and weight
by 40%.
Abuse fears
Ashley's parents said the decision to remove their daughter's uterus and
breast buds was for the girl's comfort and safety.
"Ashley has no need for her uterus since she will not be bearing
children," they said, adding that the decision means she will not
experience the menstrual cycle and the bleeding and discomfort commonly
associated with it.
The operation also removed the possibility of pregnancy if Ashley were
ever the victim of sexual abuse, they said.
The removal of the girl's breast buds was also done in part to avoid
sexual abuse, but was carried out primarily so she would not experience
discomfort when lying down, the parents said.
The couple emphasised their love for their daughter and said the amount
of criticism their choice of treatment attracted had surprised them.
"If the concern has something to do with the girl's dignity being
violated, then I have to protest by arguing that the girl lacks the
cognitive capacity to experience any sense of indignity," they said.
"The oestrogen treatment is not what is grotesque here. Rather, it is
the prospect of having a full-grown and fertile woman endowed with the
mind of a baby."
/end

First reading: Horror at what had been done.
Second reading: Hrmmmm.....
Third (very slow) reading: Those are wonderful parents.. as are the
medical folk involved in the treatment. I wish them well - and feel
their daughter is very lucky.
--
Pangur Ban - nonchristian theist
.
User: "Enkidu"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 04 Jan 2007 08:54:10 PM
Pangur Ban <PangurBanTheist@worldnet.att.net> wrote in
news:mn.24a07d713e57b18d.64065@worldnet.att.net:

First reading: Horror at what had been done.
Second reading: Hrmmmm.....
Third (very slow) reading: Those are wonderful parents.. as are the
medical folk involved in the treatment. I wish them well - and feel
their daughter is very lucky.

A very difficult call. The parents managed to convince the ethics
committee, and that's good enough for me.
--
Enkidu AA#2165
http://www.thoughts.leaddogs.org/
EAC Chaplain and ordained minister,
ULC, Modesto, CA
"We may eventually come to realize that chastity is no more a virtue than
malnutrition."
-Dr. Alex Comfort
.
User: "satyr"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 04 Jan 2007 11:02:54 PM
On 5 Jan 2007 02:54:10 GMT, Enkidu <fox_rgfszx@trashmail.net> wrote:

Pangur Ban <PangurBanTheist@worldnet.att.net> wrote in
news:mn.24a07d713e57b18d.64065@worldnet.att.net:

First reading: Horror at what had been done.
Second reading: Hrmmmm.....
Third (very slow) reading: Those are wonderful parents.. as are the
medical folk involved in the treatment. I wish them well - and feel
their daughter is very lucky.


A very difficult call. The parents managed to convince the ethics
committee, and that's good enough for me.

Agree. They drew a real tough card and they are playing it as best
they can. There is never going to be a good option. And nobody is in
a position to second guess them on this.
--
satyr #1953
Chairman, EAC Church Taxation Subcommittee
Director, Gideon Bible Alternative Fuel Project
Supervisor, EAC Fossil Casting Lab
.
User: "Gail Futoran"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 05 Jan 2007 02:42:33 PM
"satyr" <RsEaMtOyVrE@infidels.org> wrote in message
news:8rmrp21bhcbq3ggp001m4s3c808t7h346j@4ax.com...

On 5 Jan 2007 02:54:10 GMT, Enkidu <fox_rgfszx@trashmail.net> wrote:

Pangur Ban <PangurBanTheist@worldnet.att.net> wrote in
news:mn.24a07d713e57b18d.64065@worldnet.att.net:

First reading: Horror at what had been done.
Second reading: Hrmmmm.....
Third (very slow) reading: Those are wonderful parents.. as are the
medical folk involved in the treatment. I wish them well - and feel
their daughter is very lucky.


A very difficult call. The parents managed to convince the ethics
committee, and that's good enough for me.


Agree. They drew a real tough card and they are playing it as best
they can. There is never going to be a good option. And nobody is in
a position to second guess them on this.

--
satyr #1953
Chairman, EAC Church Taxation Subcommittee
Director, Gideon Bible Alternative Fuel Project
Supervisor, EAC Fossil Casting Lab

"nobody nobody is in

a position to second guess them on this."

How much you wanna bet the Current Occupant of
the USA White House will direct his Attorney
General to bring a case before the US Supreme
Court to make it impossible for any parents and their
doctors to ever make this decision possible again?
FWIW I agree with y'all. I read the story in our
local paper this morning and had the same
reaction you did. The parents seem to have acted
responsibly toward their child.
Gail
aa#2247
.

User: "Enkidu"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 04 Jan 2007 11:20:07 PM
satyr <RsEaMtOyVrE@infidels.org> wrote in
news:8rmrp21bhcbq3ggp001m4s3c808t7h346j@4ax.com:

On 5 Jan 2007 02:54:10 GMT, Enkidu <fox_rgfszx@trashmail.net> wrote:

Pangur Ban <PangurBanTheist@worldnet.att.net> wrote in
news:mn.24a07d713e57b18d.64065@worldnet.att.net:

First reading: Horror at what had been done.
Second reading: Hrmmmm.....
Third (very slow) reading: Those are wonderful parents.. as are the
medical folk involved in the treatment. I wish them well - and feel
their daughter is very lucky.


A very difficult call. The parents managed to convince the ethics
committee, and that's good enough for me.


Agree. They drew a real tough card and they are playing it as best
they can. There is never going to be a good option. And nobody is in
a position to second guess them on this.

Then there's Bill Frist.
--
Enkidu AA#2165
http://www.thoughts.leaddogs.org/
EAC Chaplain and ordained minister,
ULC, Modesto, CA
"We only half live when we only half think."
Voltaire (1694-1778)
.
User: "johac"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 05 Jan 2007 01:21:01 AM
In article <Xns98AED92057589255229@130.133.1.4>,
Enkidu <fox_rgfszx@trashmail.net> wrote:

satyr <RsEaMtOyVrE@infidels.org> wrote in
news:8rmrp21bhcbq3ggp001m4s3c808t7h346j@4ax.com:

On 5 Jan 2007 02:54:10 GMT, Enkidu <fox_rgfszx@trashmail.net> wrote:

Pangur Ban <PangurBanTheist@worldnet.att.net> wrote in
news:mn.24a07d713e57b18d.64065@worldnet.att.net:

First reading: Horror at what had been done.
Second reading: Hrmmmm.....
Third (very slow) reading: Those are wonderful parents.. as are the
medical folk involved in the treatment. I wish them well - and feel
their daughter is very lucky.


A very difficult call. The parents managed to convince the ethics
committee, and that's good enough for me.


Agree. They drew a real tough card and they are playing it as best
they can. There is never going to be a good option. And nobody is in
a position to second guess them on this.


Then there's Bill Frist.

Good riddance to the cat killer.
I agree that the parents are trying to make the best out of a very lousy
deal and I have no idea what I would do in a situation like that.
--
John Hachmann aa #1782
"Those who can make you believe absurdities can make you commit atrocities"
-Voltaire
Contact - Throw a .net over the .com
.

User: "satyr"

Title: Re: Treatment keeps girl child-sized [how horrifying for the parents] 05 Jan 2007 12:06:05 AM
On 5 Jan 2007 05:20:07 GMT, Enkidu <fox_rgfszx@trashmail.net> wrote:

satyr <RsEaMtOyVrE@infidels.org> wrote in
news:8rmrp21bhcbq3ggp001m4s3c808t7h346j@4ax.com:

On 5 Jan 2007 02:54:10 GMT, Enkidu <fox_rgfszx@trashmail.net> wrote:

Pangur Ban <PangurBanTheist@worldnet.att.net> wrote in
news:mn.24a07d713e57b18d.64065@worldnet.att.net:

First reading: Horror at what had been done.
Second reading: Hrmmmm.....
Third (very slow) reading: Those are wonderful parents.. as are the
medical folk involved in the treatment. I wish them well - and feel
their daughter is very lucky.


A very difficult call. The parents managed to convince the ethics
committee, and that's good enough for me.


Agree. They drew a real tough card and they are playing it as best
they can. There is never going to be a good option. And nobody is in
a position to second guess them on this.


Then there's Bill Frist.

There's a nobody for ya.
--
satyr #1953
Chairman, EAC Church Taxation Subcommittee
Director, Gideon Bible Alternative Fuel Project
Supervisor, EAC Fossil Casting Lab
.






  Page 1 of 1

1

 


Related Articles
Scientists find fossil of super-sized bug Sea scorpion, which measured 8 feet long
Re: Fish in trees and elephant-sized squid - the future as seen onTV
A Texas-sized snicker.
Earth Sized Planets Discovered!
OT: Pint-sized peace
Re: Parents who don't circumcise should be commended
Parents force God into school show
Anti-war, anti-American, protesters awful trick on soldiers parents
'Intelligent Design' Is Religious Argument, Not Science, Say Parents
--The Selfishness of Mary and Bob Schindler, Terri Schiavo's Parents--
Re: Gay Foster Parents More Apt to Molest
School Expels Girl for Having Gay Parents
Parents challenge US 'intelligent design' teaching
Re: PRISONERS BEHAVE THEMSELVES WHEN EXECUTED ==> Parents Charged with Capital Murder in Baby's Death
Ninth Circuit: No Constitutional Right for Parents to Exclusively Teach Children About Sex
 

NEWER

pg.3585     pg.2749     pg.2106     pg.1612     pg.1232     pg.940     pg.716     pg.544     pg.412     pg.311     pg.234     pg.175     pg.130     pg.96     pg.70     pg.50     pg.35     pg.24     pg.16     pg.10     pg.6     pg.3     pg.1

OLDER