Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
.
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|
| User: "used2be" |
|
| Title: Re: Eye Update |
28 Sep 2007 04:12:19 PM |
|
|
"Jane" <freakmagnet66@yahoo.com> wrote in message
news:1190995382.602583.188250@k79g2000hse.googlegroups.com...
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
:(
.
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|
| User: "Teilhard Knight" |
|
| Title: Re: Eye Update |
28 Sep 2007 06:34:20 PM |
|
|
it's the begging for help that's wearing me down.
I am very sensitive to this, Jane. I am sorry you find yourself in this
awful situation. I really hope the specialist contacts you soon. I know what
it is to need help and have the telephone silent. I wish I could offer you
some comfort. Get my good vibes and take very much care of yourself, please.
--
Teilhard Knight
The Extraterrestrial
----------------------------------------------------------
I am not screwed up .......... It's all in my mind
.
|
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| User: "Jane" |
|
| Title: Re: Eye Update |
28 Sep 2007 08:02:42 PM |
|
|
"Teilhard Knight" <teilhk@privacy.net> wrote in message
news:5m5hc1Fbr2ukU1@mid.individual.net...
it's the begging for help that's wearing me down.
I am very sensitive to this, Jane. I am sorry you find yourself in this
awful situation. I really hope the specialist contacts you soon. I know
what it is to need help and have the telephone silent. I wish I could
offer you some comfort. Get my good vibes and take very much care of
yourself, please.
--
Teilhard Knight
The Extraterrestrial
----------------------------------------------------------
I am not screwed up .......... It's all in my mind
thanks my dear... I'm just holding out that the wait doesn't do more
damage. It's not painful anymore, which is a blessing, just a little
bothersome, like looking through dirt debris looking water... I think that
might be a good description. My vision is still 20/20 if I look through the
debris, but so annoying!!!
.
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| User: "lisa in mass." |
|
| Title: Re: Eye Update |
28 Sep 2007 01:07:34 PM |
|
|
Jane wrote...
Well...
Just a quick update, the Iritis is gone but the
Ophthalmologist has now found cells in the Posterior (Back)
of the eye, so my new diagnosis is Bi-lateral Posterior
Uveitis. Rare, very rare actually. This ups the anti as
far a seriousness, to the point that my Ophthalmologist
said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a
Ophthalmologist for 30 years and only had one other case of
Iritis and her's was chemically induced from getting perm
solution in her eyes. So it seems I won the lottery on
illnesses!
Anyway, I do have a message into the specialist but can't
seem to get him or his assistant to call me back. So for
now my appt isn't until February and well that might be
just a little too far off. I'm discouraged, depressed, and
really feeling like ignoring the whole freaking thing and
just going on with my life, but then I will probably go
blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the
appointments, get the answers for me, I'll just go to the
appointments and be treated it's the begging for help
that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being
pathetic.
Jane
Did you ask if there's a cancellation list? I've gotten in
much earlier when on one. Also, sometimes having your current
doctor's office make the appointment, if they will, can get
you an earlier slot. Not always, but worth a shot.
Sorry to hear that you're still going through this crap. It's
the last thing you need right now.
I hope you get better news, or at least an earlier appt soon!
-lisa
.
|
|
|
| User: "Jane" |
|
| Title: Re: Eye Update |
28 Sep 2007 01:32:04 PM |
|
|
On Sep 28, 2:07 pm, "lisa in mass." <mcc...@rcn.com> wrote:
Jane wrote...
Well...
Just a quick update, the Iritis is gone but the
Ophthalmologist has now found cells in the Posterior (Back)
of the eye, so my new diagnosis is Bi-lateral Posterior
Uveitis. Rare, very rare actually. This ups the anti as
far a seriousness, to the point that my Ophthalmologist
said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a
Ophthalmologist for 30 years and only had one other case of
Iritis and her's was chemically induced from getting perm
solution in her eyes. So it seems I won the lottery on
illnesses!
Anyway, I do have a message into the specialist but can't
seem to get him or his assistant to call me back. So for
now my appt isn't until February and well that might be
just a little too far off. I'm discouraged, depressed, and
really feeling like ignoring the whole freaking thing and
just going on with my life, but then I will probably go
blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the
appointments, get the answers for me, I'll just go to the
appointments and be treated it's the begging for help
that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being
pathetic.
Jane
Did you ask if there's a cancellation list? I've gotten in
much earlier when on one. Also, sometimes having your current
doctor's office make the appointment, if they will, can get
you an earlier slot. Not always, but worth a shot.
Sorry to hear that you're still going through this crap. It's
the last thing you need right now.
I hope you get better news, or at least an earlier appt soon!
-lisa- Hide quoted text -
- Show quoted text -
Because Posterior Uveitis is so complex it's hard to know where to
start. My Ophthalmologist doesn't even know "who" to refer me to.
There isn't a lot known about it and there are only 100 specialists
through out the US, so getting in is more of a draw of the straw and
lately I've not been very lucky, so now I'm just hoping the ol'eyes
hang in there until I can get into see this guy.
.
|
|
|
| User: "Alan Harding" |
|
| Title: Re: Eye Update |
28 Sep 2007 03:29:23 PM |
|
|
In message <1191004324.166362.258350@g4g2000hsf.googlegroups.com>, Jane
<freakmagnet66@yahoo.com> writes
On Sep 28, 2:07 pm, "lisa in mass." <mcc...@rcn.com> wrote:
Jane wrote...
Well...
Just a quick update, the Iritis is gone but the
Ophthalmologist has now found cells in the Posterior (Back)
of the eye, so my new diagnosis is Bi-lateral Posterior
Uveitis. Rare, very rare actually. This ups the anti as
far a seriousness, to the point that my Ophthalmologist
said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a
Ophthalmologist for 30 years and only had one other case of
Iritis and her's was chemically induced from getting perm
solution in her eyes. So it seems I won the lottery on
illnesses!
Anyway, I do have a message into the specialist but can't
seem to get him or his assistant to call me back. So for
now my appt isn't until February and well that might be
just a little too far off. I'm discouraged, depressed, and
really feeling like ignoring the whole freaking thing and
just going on with my life, but then I will probably go
blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the
appointments, get the answers for me, I'll just go to the
appointments and be treated it's the begging for help
that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being
pathetic.
Jane
Did you ask if there's a cancellation list? I've gotten in
much earlier when on one. Also, sometimes having your current
doctor's office make the appointment, if they will, can get
you an earlier slot. Not always, but worth a shot.
Sorry to hear that you're still going through this crap. It's
the last thing you need right now.
I hope you get better news, or at least an earlier appt soon!
Because Posterior Uveitis is so complex it's hard to know where to
start. My Ophthalmologist doesn't even know "who" to refer me to.
There isn't a lot known about it and there are only 100 specialists
through out the US, so getting in is more of a draw of the straw and
lately I've not been very lucky, so now I'm just hoping the ol'eyes
hang in there until I can get into see this guy.
Maybe the very rareness will get them interested, and you an early
appointment.
--
The opinions given above may be mine. They might also
just be what I feel like saying right now, okay?
.
|
|
|
| User: "Jane" |
|
| Title: Re: Eye Update |
28 Sep 2007 05:01:24 PM |
|
|
"Alan Harding" <Alan@harding.demon.co.uk> wrote in message
news:q0OwrEHjQW$GFw8v@harding.demon.co.uk...
In message <1191004324.166362.258350@g4g2000hsf.googlegroups.com>, Jane
<freakmagnet66@yahoo.com> writes
On Sep 28, 2:07 pm, "lisa in mass." <mcc...@rcn.com> wrote:
Jane wrote...
Well...
Just a quick update, the Iritis is gone but the
Ophthalmologist has now found cells in the Posterior (Back)
of the eye, so my new diagnosis is Bi-lateral Posterior
Uveitis. Rare, very rare actually. This ups the anti as
far a seriousness, to the point that my Ophthalmologist
said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a
Ophthalmologist for 30 years and only had one other case of
Iritis and her's was chemically induced from getting perm
solution in her eyes. So it seems I won the lottery on
illnesses!
Anyway, I do have a message into the specialist but can't
seem to get him or his assistant to call me back. So for
now my appt isn't until February and well that might be
just a little too far off. I'm discouraged, depressed, and
really feeling like ignoring the whole freaking thing and
just going on with my life, but then I will probably go
blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the
appointments, get the answers for me, I'll just go to the
appointments and be treated it's the begging for help
that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being
pathetic.
Jane
Did you ask if there's a cancellation list? I've gotten in
much earlier when on one. Also, sometimes having your current
doctor's office make the appointment, if they will, can get
you an earlier slot. Not always, but worth a shot.
Sorry to hear that you're still going through this crap. It's
the last thing you need right now.
I hope you get better news, or at least an earlier appt soon!
Because Posterior Uveitis is so complex it's hard to know where to
start. My Ophthalmologist doesn't even know "who" to refer me to.
There isn't a lot known about it and there are only 100 specialists
through out the US, so getting in is more of a draw of the straw and
lately I've not been very lucky, so now I'm just hoping the ol'eyes
hang in there until I can get into see this guy.
Maybe the very rareness will get them interested, and you an early
appointment.
I hope so Alan, I'll be making those calls again on Monday if I don't get an
email back this weekend.
.
|
|
|
|
|
|
|
| User: "Noon Cat Nick" |
|
| Title: Re: Eye Update |
28 Sep 2007 11:21:46 AM |
|
|
Jane wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Sorry.
.
|
|
|
| User: "Contrarian" |
|
| Title: Re: Eye Update |
01 Oct 2007 06:21:19 PM |
|
|
Noon Cat Nick <chatdemidiSPAMBEGONE@hotmail.com> wrote:
Jane wrote:
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Oh is this one you do not want to win.
I just wish someone else would call the doctors, schedule the
appointments, get the answers for me, I'll just go to the appointments
and be treated it's the begging for help that's wearing me down.
I can understand that.
.
|
|
|
| User: "%" |
|
| Title: Re: Eye Update |
01 Oct 2007 06:24:27 PM |
|
|
"Contrarian" <adrba65@gmail.com> wrote in message
news:PhfMi.1098$Qr.245@newsread1.mlpsca01.us.to.verio.net...
Noon Cat Nick <chatdemidiSPAMBEGONE@hotmail.com> wrote:
Jane wrote:
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Oh is this one you do not want to win.
I just wish someone else would call the doctors, schedule the
appointments, get the answers for me, I'll just go to the
appointments
and be treated it's the begging for help that's wearing me down.
I can understand that.
i saw that
.
|
|
|
|
| User: "Jane" |
|
| Title: Re: Eye Update |
01 Oct 2007 06:38:55 PM |
|
|
"Contrarian" <adrba65@gmail.com> wrote in message
news:PhfMi.1098$Qr.245@newsread1.mlpsca01.us.to.verio.net...
Noon Cat Nick <chatdemidiSPAMBEGONE@hotmail.com> wrote:
Jane wrote:
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Oh is this one you do not want to win.
You're right I definately don't want to win this, but it seems I'm damned or
something...
I just wish someone else would call the doctors, schedule the
appointments, get the answers for me, I'll just go to the appointments
and be treated it's the begging for help that's wearing me down.
I can understand that.
Thanks hun, you always understand my crap and I do appreciate it!
Hugs
Jane
.
|
|
|
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|
|
| User: "Tim Kett" |
|
| Title: Re: Eye Update |
28 Sep 2007 10:05:31 PM |
|
|
Make appointment in person, since phone dont work?
Jane wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
.
|
|
|
|
| User: "aj suburban dude" |
|
| Title: Re: Eye Update |
02 Oct 2007 12:37:25 AM |
|
|
On Sep 28, 11:03 am, Jane <freakmagne...@yahoo.com> wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
as i've been sitting here sore as hell, wondering if my neck is gonna
be okay i'm thinking of all the people will *real* problems, real
worried, including your eye condition. wish there was a magic pill for
that like, there is for pain...
.
|
|
|
| User: "Jane" |
|
| Title: Re: Eye Update |
02 Oct 2007 09:15:24 AM |
|
|
On Oct 2, 1:37 am, aj suburban dude <suburbanl...@mail.com> wrote:
On Sep 28, 11:03 am, Jane <freakmagne...@yahoo.com> wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
as i've been sitting here sore as hell, wondering if my neck is gonna
be okay i'm thinking of all the people will *real* problems, real
worried, including your eye condition. wish there was a magic pill for
that like, there is for pain...- Hide quoted text -
- Show quoted text -
Hi AJ,
Falling down the stairs and hurting yourself regardless of how serious
or not that it is, is still a "real" problem. I imagine how much it
hurts, limping around, sore neck etc. You have every right to feel
crappy, just like I do, and you have every right to worry you damaged
something beyond what you feel right now, falling down the stairs is
no brush off matter.
There probably is a magic pill for my eyes, it's just getting all the
damn test done to find out the cause of it that I'm having a hard time
getting done.
Today is not a good optimistic day for me.
Jane
.
|
|
|
|
|
| User: "aj suburban dude" |
|
| Title: Re: Eye Update |
28 Sep 2007 10:16:23 PM |
|
|
On Sep 28, 11:03 am, Jane <freakmagne...@yahoo.com> wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
hey Jane, I just read this.... as incredibly rare as this is, i am
hoping for an equally rare cure, and/or miracle, so that your eyes and
eyesight will be fine. i too would be really depressed, discouraged,
etc. hopefully that specialist will get back to you, and soon. you
should have an appointment ASAP. if those doctors have any decency,
they'll contact you right away. especially with this being so rare.
at the very LEAST they can try to work on this because it'll give them
an oppertunity to do help something that's rarely out there. i mean
that's how i'd look at it if i was them. hopefully that'll translate
into the best of care for you.
.
|
|
|
| User: "Jane" |
|
| Title: Re: Eye Update |
29 Sep 2007 08:07:30 AM |
|
|
"aj suburban dude" <suburbanlife@mail.com> wrote in message
news:1191035783.753652.244720@k79g2000hse.googlegroups.com...
On Sep 28, 11:03 am, Jane <freakmagne...@yahoo.com> wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
hey Jane, I just read this.... as incredibly rare as this is, i am
hoping for an equally rare cure, and/or miracle, so that your eyes and
eyesight will be fine. i too would be really depressed, discouraged,
etc. hopefully that specialist will get back to you, and soon. you
should have an appointment ASAP. if those doctors have any decency,
they'll contact you right away. especially with this being so rare.
at the very LEAST they can try to work on this because it'll give them
an oppertunity to do help something that's rarely out there. i mean
that's how i'd look at it if i was them. hopefully that'll translate
into the best of care for you.
that's how I thought about it too AJ. Figured these Ocular Immunologist
must be bored with this being so rare, yet there are only 100 of them in the
US, people are flying all over the country to save their visions, and I
happen to have one living and working less then an hours drive from me and I
can't get the ***** to return my call.
.
|
|
|
| User: "aj suburban dude" |
|
| Title: Re: Eye Update |
01 Oct 2007 09:48:28 AM |
|
|
On Sep 29, 8:07 am, "Jane" <jarsenal66nos...@hotmail.com> wrote:
"aj suburban dude" <suburbanl...@mail.com> wrote in messagenews:1191035783.753652.244720@k79g2000hse.googlegroups.com...
On Sep 28, 11:03 am, Jane <freakmagne...@yahoo.com> wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
hey Jane, I just read this.... as incredibly rare as this is, i am
hoping for an equally rare cure, and/or miracle, so that your eyes and
eyesight will be fine. i too would be really depressed, discouraged,
etc. hopefully that specialist will get back to you, and soon. you
should have an appointment ASAP. if those doctors have any decency,
they'll contact you right away. especially with this being so rare.
at the very LEAST they can try to work on this because it'll give them
an oppertunity to do help something that's rarely out there. i mean
that's how i'd look at it if i was them. hopefully that'll translate
into the best of care for you.
that's how I thought about it too AJ. Figured these Ocular Immunologist
must be bored with this being so rare, yet there are only 100 of them in the
US, people are flying all over the country to save their visions, and I
happen to have one living and working less then an hours drive from me and I
can't get the ***** to return my call.
I'd storm into his office and say:
"look, mr special doctor, you're the only one near me that has a
chance to save my vision, why didn't you return my call, isn't it your
oath to help heal those in need" etc.
.
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| User: "Janithor" |
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| Title: Re: Eye Update |
28 Sep 2007 02:54:13 PM |
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x-no-archive: yes
Jane wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
It sucks you have to push like that. Do you have anyone at all who can
help? Or would that not help, is it just a waiting game?
.
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| User: "Jane" |
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| Title: Re: Eye Update |
28 Sep 2007 03:09:15 PM |
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On Sep 28, 3:54 pm, Janithor <Janit...@comcast.net> wrote:
x-no-archive: yes
Jane wrote:
Well...
Just a quick update, the Iritis is gone but the Ophthalmologist has
now found cells in the Posterior (Back) of the eye, so my new
diagnosis is Bi-lateral Posterior Uveitis. Rare, very rare actually.
This ups the anti as far a seriousness, to the point that my
Ophthalmologist said I have to go see a Oculary Immunologist, this is
beyond his practice and he's been practicing as a Ophthalmologist for
30 years and only had one other case of Iritis and her's was
chemically induced from getting perm solution in her eyes. So it
seems I won the lottery on illnesses!
Anyway, I do have a message into the specialist but can't seem to get
him or his assistant to call me back. So for now my appt isn't until
February and well that might be just a little too far off. I'm
discouraged, depressed, and really feeling like ignoring the whole
freaking thing and just going on with my life, but then I will
probably go blind and what kind of life would that be? I just wish
someone else would call the doctors, schedule the appointments, get
the answers for me, I'll just go to the appointments and be treated
it's the begging for help that's wearing me down.
Well I'm going to go feel sorry for myself, I hate being pathetic.
Jane
It sucks you have to push like that. Do you have anyone at all who can
help? Or would that not help, is it just a waiting game?- Hide quoted text -
- Show quoted text -
Yeah right now it's a waiting game. This specialist is trying to pull
strings for me now, I just am pushing to find out if he was able to.
I do have an appointment for February but I can't wait that long. If
it comes down to it, I know what type of test I need and most of them
are through a rheumatologist, I think I may have AS (Ankylosis
Spondylitis) which is a Rheumatoid Arthritis of the spine, I also have
a IBD (Chrones or Ulcerative Colitis) There are a couple of blood
test to confirm that and once they start finding the Autoimmune
diseases that I have they treat those and it will start to
automatically treat the eyes. That's the thing Iritis/Uveitis is an
Autoimmune disease usually a side effect by other autoimmune diseases,
that's why I'm tryin to see this specialists, its far more complicated
then a normal Ophthalmologist line of practice or for that matter a
regular MD, jeeez I'm so special...
.
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| User: "Alan Harding" |
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| Title: Re: Eye Update |
29 Sep 2007 02:27:35 AM |
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In message <1191010155.135280.300030@w3g2000hsg.googlegroups.com>, Jane
<jarsenal66@hotmail.com> writes
On Sep 28, 3:54 pm, Janithor <Janit...@comcast.net> wrote:
Jane wrote:
jeeez I'm so special...
True, true. :)
--
The opinions given above may be mine. They might also
just be what I feel like saying right now, okay?
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| User: "Janithor" |
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| Title: Re: Eye Update |
28 Sep 2007 03:13:36 PM |
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x-no-archive: yes
Jane wrote:
Yeah right now it's a waiting game. This specialist is trying to pull
strings for me now, I just am pushing to find out if he was able to.
I do have an appointment for February but I can't wait that long. If
it comes down to it, I know what type of test I need and most of them
are through a rheumatologist, I think I may have AS (Ankylosis
Spondylitis) which is a Rheumatoid Arthritis of the spine, I also have
a IBD (Chrones or Ulcerative Colitis) There are a couple of blood
test to confirm that and once they start finding the Autoimmune
diseases that I have they treat those and it will start to
automatically treat the eyes. That's the thing Iritis/Uveitis is an
Autoimmune disease usually a side effect by other autoimmune diseases,
that's why I'm tryin to see this specialists, its far more complicated
then a normal Ophthalmologist line of practice or for that matter a
regular MD, jeeez I'm so special...
Jeez Jane, I don't know what to say. What exactly did you do in your
past life to deserve all this? ;-)
.
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| User: "Jane" |
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| Title: Re: Eye Update |
28 Sep 2007 05:02:35 PM |
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"Janithor" <Janithor@comcast.net> wrote in message
news:46FD6070.2020407@comcast.net...
x-no-archive: yes
Jane wrote:
Yeah right now it's a waiting game. This specialist is trying to pull
strings for me now, I just am pushing to find out if he was able to.
I do have an appointment for February but I can't wait that long. If
it comes down to it, I know what type of test I need and most of them
are through a rheumatologist, I think I may have AS (Ankylosis
Spondylitis) which is a Rheumatoid Arthritis of the spine, I also have
a IBD (Chrones or Ulcerative Colitis) There are a couple of blood
test to confirm that and once they start finding the Autoimmune
diseases that I have they treat those and it will start to
automatically treat the eyes. That's the thing Iritis/Uveitis is an
Autoimmune disease usually a side effect by other autoimmune diseases,
that's why I'm tryin to see this specialists, its far more complicated
then a normal Ophthalmologist line of practice or for that matter a
regular MD, jeeez I'm so special...
Jeez Jane, I don't know what to say. What exactly did you do in your past
life to deserve all this? ;-)
I don't know but I'll kick my pre-***** if I catch up to her in my next
life...
.
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